Understanding Sundowning and Behaviour Changes
Changes in behaviour are often among the most challenging experiences families face when supporting someone living with dementia or another progressive neurological condition. A loved one who has always been calm and predictable may suddenly become restless, anxious, confused, withdrawn, or emotionally distressed; particularly during the late afternoon or evening. These changes can be unexpected, emotionally difficult, and leave families wondering what has changed or whether they are doing something wrong.
One of the most common patterns families observe is known as sundowning, sometimes referred to as late-day confusion or sundown syndrome. Although it is not considered a disease or a separate diagnosis, sundowning describes a collection of symptoms that often become more noticeable as daylight fades and evening approaches. Individuals may experience increased confusion, agitation, pacing, irritability, anxiety, emotional distress, or changes in communication and behaviour that seem out of character.
While sundowning is frequently associated with Alzheimer's disease and other forms of dementia, it can also affect individuals living with Lewy Body Dementia, Parkinson's disease dementia, vascular dementia, and other neurological conditions that influence cognition and daily functioning. Every person's experience is unique. Some individuals may experience only mild changes, while others may require additional reassurance, environmental adjustments, or increased support during certain times of the day.
Is Sundowning a Normal Part of Dementia?
Not everyone living with dementia experiences sundowning, and the severity of symptoms can vary considerably from one individual to another. For those who do experience it, the changes often develop gradually and may become more noticeable as the condition progresses. While sundowning can be distressing for both the individual and their family, recognizing it as a common behavioural pattern allows caregivers to respond with greater understanding, patience, and confidence rather than fear or uncertainty.
Why Do Behaviour Changes Occur?
Behaviour changes rarely happen without reason. Although dementia affects the brain's ability to process information, behaviour is often a form of communication rather than intentional resistance or difficult behaviour.
An individual may become distressed because they are tired, overstimulated, experiencing discomfort, unable to communicate a need, confused by their surroundings, or struggling to make sense of what they are experiencing. In many situations, the behaviour itself is not the problem; it is a signal that something else requires attention.
Many dementia care professionals encourage families to think of behaviour as they would think of physical symptoms such as pain or fever. Rather than viewing agitation, pacing, or emotional distress as the primary problem, these behaviours can often be understood as outward expressions of an unmet physical, emotional, environmental, or communication need. Looking beyond the behaviour itself frequently leads to more compassionate caregiving and more successful problem-solving.
Understanding behaviour through this perspective allows families to move away from asking:
"How do we stop this behaviour?"
…and instead begin asking: "What might this person be trying to communicate?"
This simple shift often leads to more compassionate responses and more effective support.
Understanding Before Reacting
It is also important to recognize that behaviour changes are often influenced by multiple factors working together. Fatigue, changes in routine, unfamiliar environments, reduced lighting, pain, dehydration, hunger, medication effects, illness, overstimulation, loneliness, or difficulty interpreting surroundings can all contribute to changes in mood and behaviour.
Because these factors differ from person to person, there is rarely a single solution that works for everyone. Instead, successful support often comes from observing patterns, understanding individual triggers, and making thoughtful adjustments that help the person feel calmer, safer, and more secure.
Although behaviour changes can feel overwhelming at first, many families discover that education, patience, and consistent routines significantly reduce both uncertainty and stress. By understanding why these behaviours occur, it becomes possible to respond with empathy rather than frustration while preserving dignity, strengthening relationships, and improving quality of life for everyone involved.
At Senior Helpers Victoria, we believe that understanding behaviour is one of the most valuable tools families can develop. Through practical, evidence-informed education, our goal is to help older adults and families throughout Greater Victoria better understand sundowning and behaviour changes, recognize common patterns, and develop compassionate strategies that support safety, confidence, and meaningful daily living.
Families throughout Greater Victoria often tell us that behaviour changes are among the most emotionally challenging aspects of supporting a loved one living with dementia. Our goal is to provide trusted local education that helps replace uncertainty with understanding while giving families practical strategies they can confidently apply at home.